I Wish I Didn’t Know That

(December 20, 2013) Hear the audio version

I was still in my jammies one morning in September when I received a chirpy “Your 23andMe Results Are Ready!” email from the Mountain View personal genetic testing company. A couple of clicks and password led me to a chart showing health risks identified by the spit test I’d sent in. Scanning quickly, I saw that I had more than three times the risk of developing celiac disease. No surprise there, as my daughter has it and I already knew I’d given her the gene. The report said I’m also at risk for other autoimmune diseases. I knew that too.

What set my heart racing was the Alzheimer’s Disease risk line. Did I really want to see that result? 23andMe asked.

Huh. My husband didn’t get that prompt.

Did I? Why, Pandora, I asked myself, would you have paid $99 if you did not want to open the box? I know you’d hoped to find out you didn’t have an Alzheimer’s gene. Now what are you going to do?

Of course I kept going. The next page looked like a terms-of-service agreement, and I read it just about as carefully before agreeing. Turns out I do have one copy of the APOE4 variant, which is “associated with an increased risk of Alzheimer’s.”

Oh.

Was I the sort of person the FDA was thinking about when, two months later, it sent a warning letter to 23andMe ordering it to discontinue marketing DNA test kits because they’re medical devices? That saliva kit certainly led to medical results that I still can’t decide I’m glad to know. Through my own research, I learned I can substantially lower my risk of developing Alzheimer’s by exercising. So I’m even more diligent about taking brisk walks in the foothills and going to the gym twice a week for resistance training. But would I have benefitted from an across-the-table genetic counselor? You bet. My $99 didn’t cover that. If we’re going to be the genetic pioneers 23andMe says we are, it’s important to remember that the 21st century wilderness can be overwhelming, calling for more than a simple Internet connection.

With a Perspective, I’m Debbie Duncan.

Gluten Free-for-All

(July 25, 2013) Hear the audio version

Have you been hearing the term gluten-free more lately? Well, I have, and I don’t think it’s only because my daughter was diagnosed with celiac disease 21 years ago, and therefore follows a strict—and I mean strict—gluten-free diet: no wheat, barley, rye, or contaminated oats … ever. Even a crumb makes Molly violently ill. Long-term exposure could give her cancer. As her activist mother I’ve been promoting awareness about gluten and celiac disease for more than two decades. I thought it helped keep Molly safe and healthy.

Now I’m not so sure. Gluten-free is no longer an obscure food restriction; it’s a full-fledged fad and diet trend. Celebrities trumpet the supposed weight-loss properties of going gluten-free. It’s baloney. There are thousands more gluten-free products available than 20 years ago, but few would be considered “diet” fare. Even restaurants have jumped in. Ironically, that has made it harder for celiacs to go out to eat.

Why? Chefs used to come to our table when Molly ordered her meal. Now almost all servers know about gluten, but they underestimate its seriousness for celiacs. Awareness has led to complacency. In the last year Molly has gotten sick after eating at restaurants she used to be able to enjoy.

A national pizza chain promotes its gluten-free pizza, but it’s not safe for celiacs because of cross-contamination: all pizzas are made in the same kitchen and sliced with the same knives. Talk about exploiting a trend! As Dr. Stefano Guandalini, president of the North American Society for the Study of Celiac Disease said, “A product is either gluten-free or it is not.”

After extensive pressure from the celiac community, in February the FDA sent to the White House’s Office of Information and Regulatory Affairs a new set of rules dictating what foods can be labeled gluten-free. Yet nothing has been done about it.

Which is is too bad, because after the gluten-free bandwagon pulls out of town, there will still be millions of true celiacs in this country who could use the government’s help staying safe and healthy. It’s time to act, Mr. President.

With a Perspective, I’m Debbie Duncan.

Sweet 16

(March 29, 2013) Hear the audio version

So, how are your March Madness brackets looking this week? A little wobbly? Mine are good: Stanford and Cal are still standing. So are Baylor, UConn and Notre Dame. “Ohhh,” you say. “You’re talking about the women.”

You bet! I’m always amazed when women who promote women’s causes all year ‘round and also like basketball often ignore the NCAA women’s tournament. This is not the basketball I played in high school pre-Title IX, wearing a ridiculous red jumper over a long-sleeved white blouse and not crossing the center line, as I was a forward and not allowed to play the entire court. (Only “rovers” could do that.)

Take the undisputed star of women’s college basketball, 6-foot-8 Baylor senior center Brittney Griner, with a 7-foot-4-inch wingspan and a 60.8 percent field-goal percentage. She ranks first in the NCAA among women and men in blocking shots.

Stanford’s Chiney Ogwumike, a junior forward and Pac-12 Player of the Year, helped hand Brittney’s Bears their only defeat of the season. Layshia Clarendon, a senior at Cal, led her Golden Bears in scoring and earned Pac-12 Scholar Athlete of the Year honors. Perhaps she’s why President Obama picked Cal to make it to the Final Four.

These young women and their teammates are actual student-athletes. According to ESPN, the 64 schools in the NCAA women’s basketball tournament combined to graduate 90 percent of their players. The men’s teams? Only 70 percent. Women don’t jump ship after a year or two to play for the NBA, as many students at elite university men’s programs do. Less turnover means athletes have more time to grow together as a team. It’s also fun for fans to see players mature through their college careers. And though I bleed Cardinal red, I’ve loved watching the emerging success of women’s basketball in Berkeley.

So if you’re fine with a crapshoot, go ahead and stay in the men’s pool. But my (imaginary) bets are on the teams on the way to the Women’s Final Four in New Orleans. You’re welcome to join me.

With a Perspective, I’m Debbie Duncan.

Big Game in October?

(October 19, 2012) Hear the audio version

Debbie:            Erin, you ready for Big Game this Saturday?

 

Erin:            We bleed blue at our house. GO BEARS!

 

Debbie:             Well, I’m not. Scheduling Big Game in October … It’s like—

 

Erin:            —moving New Year’s Eve to the 4th of July because the weather’s better?

 

Debbie:            Exactly. Big Game tradition goes back to the 19th century …

 

Erin:            … when it was called the Thanksgiving Game.

 

Debbie:            Because it was usually, and traditionally, played around Thanksgiving …

 

Erin:            … until this year.

 

Debbie:            Now it’s all about TV, and the lure of revenue that comes in to both Cal and Stanford from broadcasting games …

 

Erin:            … with student-athletes as “products” …

 

Debbie:            … and universities as “brands.”

 

Erin:            Meanwhile, alums, students and other fans of the Blue and Gold—

 

Debbie:            —and the Cardinal …

 

Erin:            —right. All of us who buy the tickets and cheer in the stands …

 

Debbie:            … must go along with the money-counters who run big-time college sports.

 

Erin:            And accept a crazy Pac-12 Conference schedule.

 

Debbie:             Twelve schools!

 

Erin:            Four of which are nowhere near the Pacific.

 

Debbie:            Which meant Stanford had three home games—half the season!—before students returned for the school year.

 

Erin:            I’d like to say that it bugs me that random athletic programs get paid big bucks for those pre-season away games. Whatever happened to playing for the love of the game—

 

Debbie:            —between longstanding sports rivals? Giants—Dodgers …

 

Erin:            … Cal—Stanford. I even have a favorite game, a favorite PLAY.

 

Debbie:            Here it comes …

 

Erin:            “ … the most amazing, sensational, dramatic, heartrending, exciting, thrilling finish in the history of college football!”

 

Debbie:            Thirty years later I can finally say it: I’m glad I was there for the Play. Though I still say his knee was down.

 

Erin:            NOT. I’d wish you Luck this year but he’s a Colt now. And we’re in our new stadium … Our house.

 

Debbie:             You do remember the last Big Game—2010—in the old Memorial Stadium? And we stillhave the axe.

 

Erin:             Don’t get me started. Instead of rock-paper-scissors, we should play bear-tree-axe.

 

Debbie:             Let’s just agree we’re looking forward to another exciting finish.

 

Erin:             May the best brand win! With a Perspective, I’m Erin Dealey. Go Bears!

 

Debbie:            And I’m Debbie Duncan. Beat Cal!

School Daze

(August 13, 2012) Hear the audio version

I’ve never been lonelier than on my first day of school in a new town. No matter how many times my dad’s job changes during the boom years of the Southern California defense industry made me have to start over in a new school, I never got used to looking out into a blur of unfamiliar faces at lunchtime, telling myself, “I will not cry. I will not cry.” Then before my sophomore year of high school my family moved across the country to Connecticut, where kids seemed to speak a different language. They carried “pockabooks” rather than purses, and met in the foyer—was that the same place as the “foy-yay?” I wanted to go home. But where was home?

These feelings come back to me vividly, painfully at the beginning of every school year as I think about my fellow new-kids-in-town. Perhaps the new kid’s mom or dad is in the military, and he’s done this many times before. Maybe Dad is a high-tech exec, or Mom’s a physician or professor and the family moved to Silicon Valley as the promised land. Or it’s entirely possible, especially this year, that the new girl’s parents lost their jobs and then their home to foreclosure and the family had to move in with grandparents, or other family members or friends.

They’re all facing the first day of school as a new kid. It’s scary. I hope they meet with kindness, and maybe make a new friend today. I’d like to tell them that it will get better as the year goes along. It did for me, even after those tearful beginnings. Also that my expert status as a new kid in town made it easier to adjust to new jobs as an adult. I expected to do something stupid that first day, though walking into the third floor girls restroom to find out it’s actually a smoking lounge happened only once, thank goodness. More than anything, I hope someone asks the new girl or the new boy to sit with them for lunch.

With a Perspective, I’m Debbie Duncan.

Audiobookish

(July 17, 2012) Hear the audio version

Heard any good books lately? If you’re like me and addicted to audiobooks, you know we’ll have lots to talk about, compare, recommend to one other. Though my family used to listen to Books on Tape while driving to Tahoe, it wasn’t until I got an iPod that audiobooks became a regular part of my life—classics, best-sellers, kidlit, what have you. I listen for about an hour a day while I walk in the Peninsula foothills. I’ve laughed out loud to Tina Fey reading her memoir, Bossypants, and strained to hear Jacqueline Kennedy’s breathy voice over the clinking of ice cubes in her cocktail glass as she speaks with historian Arthur Schlesinger. It took Jim Bouton more than forty years to record his baseball classic, Ball Four, and he still laughs at his old jokes and sexist stories.

The narrator doesn’t have to be the author for me to love an audiobook. I was so mesmerized by Tim Robbins’s reading of The Great Gatsby, I immediately listened to it again. Anne Hathaway brings at least two dozen characters to life in her stunning performance of The Wonderful Wizard of Oz. I’m drawn to favorite narrators the way other people wouldn’t miss a certain actor’s movie. For years my youngest went to sleep every night listening to Jim Dale read Harry Potter. When I learned Bahni Turpin was one of the readers of The Help (along with Octavia Spencer!) I had to hear it even though I’d read the book two summers ago. I can’t wait to step out the door at 6:00 every morning and listen to that recording.

If I cross paths with my friend Charlie, we take off our headphones to share what we’re listening to. He introduced me to Mark Bramhall’s reading of Wallace Stegner’s novels of the West. Angle of Reposekept me hiking from May and into June. Next on my playlist: The Big Rock Candy Mountain.

What books would you like to walk with, cook or sew with, or if you’re careful not to be too distracted, drive with? They’re waiting for you at the library, bookstore or online. Have a listen!

With a Perspective, I’m Debbie Duncan.

Books I keep on my iPod:
Anne of Green Gables, read by Arika Escalona, the best Anne on audiobooks
The Great Gatsby, read by Tim Robbins. This version includes letters and is so, so good!
The Wonderful Wizard of Oz, performed by Anne Hathaway. The voices she does!

Books I highly recommend and will listen to again sometime:
Code Name Verity, Elizabeth Wein’s amazing book of friendship during World War II.
Angle of Repose, read by Mark Bramhall. Like Anne Hathaway, he’s a genius with voices.
The Big Rock Candy Mountain, another Wallace Stegner gem read by Mark Bramhall.
The Help, read by Jenna Lamia, Bahni Turpin, Octavia Spencer. My friend Markie, an actor and fellow audiobook fan, encouraged me to get this one. She knows her stuff—I just love it.
The Watch That Ends the Night, a novel of the Titanic read by a brilliant cast of dozens. This book shines in audiobook format, even though it may be hard to keep all the voices—including John Jacob Astor, a Lebanese refugee and … the iceberg—straight. So do as I did and buy the book as well!

Life Without Gluten

(February 7, 2012) Hear the audio version

 Twenty years ago this month I first heard the word gluten, as in, “Ask your daughter’s doctor to check for gluten intolerance.” It came from a colleague of my husband’s down south in response to our pre-Internet SOS call for ideas why our 20-month-old daughter was wasting away before our eyes, and the eyes of the 54 physicians who had studied her malady over the previous three months. A biopsy taken four days later confirmed that Molly’s malnutrition was indeed caused by undiagnosed celiac disease. Right away she went on a gluten-free diet: no wheat, barley, rye, or (in those days) oats. Corn and rice were her grains of choice. We were told she’d never be able to have pasta, pizza, or decent-tasting bread, cakes or cookies.

But she would live. Food was, and still is her medicine. That’s one of the few things that hasn’t changed for celiacs in the last 20 years. Yet I refused to doom my kid to a diet of mushy pasta and doorstopper bread. I went to work finding and developing recipes the entire family would enjoy. I incorporated into my baking new whole-grain flours, some of which were old-world: sorghum, amaranth, brown rice, quinoa, teff, flax, buckwheat. Mercifully, gluten-free products started showing up on supermarket shelves, not just in specialty stores. Gluten-free bakeries opened. Restaurants offered gluten-free menu items. And gluten-free products were the hottest trend at last month’s Fancy Food Show in San Francisco!

Yet for Molly and the other one in 133 Americans who have celiac disease, or the even larger percentage of the public with a degree of gluten intolerance, gluten-free is not a fad, trend or choice. “Cheating” puts celiacs at increased risk for developing other autoimmune disorders and even cancer. Any cure for celiac disease, such as a pill containing an enzyme to break down the protein in gluten, is proving more elusive than we thought 10 years ago. But it shouldn’t continue to be so difficult for doctors to diagnose celiac disease—many adults still suffer symptoms for years.

It’s not a scary diagnosis. And there are some pretty tasty gluten-free brownies out there.

With a Perspective, I’m Debbie Duncan.

eTaxes – It’s time for Internet retailers to charge sales tax

(October 24, 2011) Hear the audio version

Remember when online shopping began, back in the last century? What convenience! No more having to schlep to the mall in the rain, or search for a parking place on El Camino Real. With a click and a credit card, we had what we wanted delivered to our doorstep. Even better, there was no sales tax! That newfangled books site up in Washington State, as well as scores of now-defunct dot-coms argued “This is new. Give it a chance. Don’t impose a tax.”

In 1992 the Supreme Court ruled that a business must have a physical presence in the state in order to be required to collect sales tax. But Amazon, that Washington State book/now-everything gargantuan online retailer, has acquired “affiliates” in California and other states. Because online shopping has matured.

And it should be taxed. It isn’t fair to other retailers that online merchants can offer what is essentially an across-the-board discount by not charging sales tax.

I say that as an author and publisher who now sells books online. When I sold physical copies of my books, I held a California State resale license and collected and paid state sales tax.

Now my eBook is being sold online tax-free. I don’t like that. The issue of taxing Internet sales is in limbo, after California struck a deal with Amazon to postpone collecting sales tax until next September. That gives Amazon, traditional retailers and Congress time to work together to pass a federal online sales tax law. Two bills have already been introduced, including, most recently, the Marketplace Equity Act co-sponsored by Peninsula Democrat Jackie Speier. I wish her and her Republican co-sponsor all the best getting even a level-the-playing-field tax bill passed by the current Congress.

In the meantime, I’ll be voluntarily contributing 8.25% of my sales to my local school district. And I encourage other online sellers to choose their worthiest public beneficiaries—state parks, libraries, whatever. Because it’s not often we get to designate where our “taxes” go.

With a Perspective, I’m Debbie Duncan.

Say What? I have congenital hearing loss. Hello, health care reform

(April 8, 2011) Hear the audio version

One morning last summer I was sitting at the kitchen table while my daughter looked into the refrigerator. “How was writers group?” she asked.

“Grapefruit’s not in season, sweetie.”

She turned so I could see her better. “Mom. Get those hearing aids.”

Oops. Several months earlier I’d finally, at age 56, had a hearing test because, well, for some reason I’d been asking her, or her sisters, or their dad, or quite a few other people to repeat themselves when I hadn’t known exactly what they’d said. But I was managing: I’d gotten really good at reading lips, which I also used while watching TV. Radio was no problem – when I wore ear buds. I didn’t mind sitting up front at writers conferences or workshops. And most of my work is in front of a computer screen anyway.

Still, a hearing test showed I didn’t have typical age-related hearing loss, where one doesn’t hear high and low pitches. “You don’t hear the sounds in between,” the technician told me. “It’s congenital. You’re a perfect candidate for hearing aids. Better sooner than later,” she chirped.

But hearing aids, especially the digital kind Huey Lewis wore on the front of the magazine she gave me and came in pretty colors, like orange, cost about three thousand dollars per ear. A hefty price not covered by insurance.

At least not then. Between the time I’d first looked into it and checking again in the summer, health reform had passed. My insurance company informed me they would now pay for hearing devices, as long as I went to a preferred provider. Thank you, Democratic Congress and Mr. President.

I call them ear mics because it’s like having little microphones in my ears that allow me to hear everything. I’m able to participate in the spoken world, not just that on the page or screen. But my ear mics also make me hear sounds I’d rather not: my dog’s toenails on the floor, unnecessary traffic noises, conversations behind me in a restaurant. So now I choose when to wear my ear mics. And like other items still being debated on the floors of Congress, I’m extremely grateful for the choice.

With a Perspective, I’m Debbie Duncan.

Torture, San Francisco Giants Style

(October 1, 2010) Hear the audio version

You may have noticed an outbreak of orange clothing lately. And orange-clad strangers high-fiving one day, then gloomingly shaking their heads the next. Or perhaps screams of delight or horror emanating from your neighbor’s TV room. The cause? Pennant fever.

The San Francisco Giants – often good, seldom great and never a World Series champion – are in the final weekend of a classic pennant race. The daily drama of clutch home runs (from a team built around pitching), painful missed opportunities (usually late in games), and inexplicable theatrics that mean hopeful victories or sleep-depriving defeats – well, it’s the drug baseball fans crave. But what gives a season-ending pennant sprint real meaning for teams like the Giants is the tantalizing, just-out-of-reach promise of a World Series ring. The great New Yorker writer Roger Angell once said that “Baseball . . . means to break your heart. . . It’s the losing, in all its variety, that makes winning so sweet.” Remember the unbridled joy of Red Sox fans when Boston won the World Series in 2004 after 86 years of frustration? Yankee fans never have that – they expect their men to steamroll to another championship.

This year’s Giants have taken the agony of pennant fever to ridiculous heights. Their broadcasters have captured the club’s m.o. in one word: torture. The team that used to win with Barry Bonds bombs and dominant pitching is now all about pitching and bleeding out just enough, and sometimes not enough runs. Even victories can be excrutiating.

When I write fiction I keep in mind there’s no story without conflict, and the pace needs to pick up near the end of the book. The Giants could not have scripted this season’s ending any better: a weekend series at home vs. the San Diego Padres, who’d occupied first place for months until the Giants caught ‘em three weeks ago in their home park. The two teams flip-flopped daily at the top until this week, when the Giants inched ahead.

So after six months and 159 games, it’s comes down to the final three. Today is Orange Friday. Pennant fever’s in the air. There’s still time to catch it.

With a Perspective, I’m Debbie Duncan.

And as we know now, the Giants won it all and became the 2010 World Series Champions. I watched the final game with other fans in San Francisco Civic Center Plaza, and cheered from the front row on Market Street at the parade. I wouldn’t have missed it for the world.